WEEK 43 OF 2022

A wet Sunday morning, got the printer working, Tim turned it upside down and gave it a good shake, a couple of little things fell out.

Printer worked find for a bit then the same problem started again, I will get Tim to give it another shake.

Another good night and a wet morning, with pain of course. A mostly fine day.

Tim rang DoH to see when the painting will be done, as well as leak in kitchen and replacement of smoke alarm someone will get back to us.

Had a phone call cancelling my feet appointment for Wednesday all fine with me.

Another pretty good night work at 5.25 feeling awake so up I got I am washed, moisturised and ready for the day.

Graham from the DoH came and inspected the bathroom and rang Rez the bathroom guy to tell him that we need a power point in the bathroom cabinet.

I am going to lay down and I expect that is when he will turn up, so Tasha will write him a note and tape it till the front door.

A new day and I am drenched in sweat going to be a warm or hot day.

The bathroom should now be done.

Leigh came over to see me and drop off some stuff.

Kathy turned up at 1.20pm to borrow our car for a few days while hers is in the shop.

Blain came down to say hi.

Had a so so night awake and up at 5.26am. Suppose too be another warm day.

Got a text from Sandy letting me know our cousin Ashley has passed away.

Sandy called in to see me.

At 2.15pm it started pissing down, it didn’t last long.

Slept in till 5.50am I am dressed and ready for my day.

I have rewrite Friday’s post.

The painter turned up at 8am he was here all day and I was stuck in my bedroom.

Tim left for work at 11am.Slept in till 5.50am I am dressed and ready for my day.

I have rewrite Friday’s post.

The painter turned up at 8am he was here all day and I was stuck in my bedroom.

I woke during the night and Tim told me that the painter left the lounge room a mess, as in all the furniture piled up in the middle of the room. Tim fixed the room took him over an hour or maybe two hours.

At least I am not in my bedroom.

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MY CONDITION LAST PART

Treatment of Dystonic Tremor

Oral Medications: Oral medications can be effective in relieving dystonic tremors in some patients. They work by interrupting the neurotransmitters, which are responsible for sending messages within the brain. Some medicines act by relaxing the muscles and thus reducing the dystonic tremors. These medicines need to be taken continuously and they also have side effects.

Botulinum Toxin Injections: This treatment can be given if the dystonic tremor is localized to one or two areas of the body. Botulinum toxin injections work by weakening the overactive muscles and they need to be taken every three months or so. If the patient is not having any improvement from the Botulinum Toxin Injections, then it may mean that the dose needs to be adjusted or the injections have not been accurately targeted. Ultrasound or electromyography (EMG) machine can be used to identify the affected muscles which need to be injected. Dystonic head tremors especially benefit from botulinum toxin injections and arm tremors do not benefit as much by them.

Surgery for Dystonic Tremor: Deep Brain Stimulation (DBS) is a surgical procedure which can be done if the patient has severe dystonic tremor and if they do not respond to other treatment methods. In Deep Brain Stimulation (DBS), electrodes are planted into the brain so they can help in rebalancing the movements of the patient and controlling the posture. A battery implanted in the chest provides power to the electrodes.

Occupational Therapy for Dystonic Tremor: If the patient has been having difficulty with daily activities of living, such as driving, cooking or eating, then special equipment can be used upon advice from the occupational therapist, which will assist the patient in managing his/her daily tasks.

EXTREME CREATURE DAY

Well here we are at Tuesday and this week’s extreme creature is the Double Drummer, any idea what it is?

Well it is a Cicada, now we all know that cicada’s are loud but the double drummer is one of the noisiest. Once it gets going, it can produce a song that’s louder than a jackhammer!

They make their sound in their abdomen by vibrating a membrane extremely quickly, only the male sing.

The double drummer, is the largest Australian species of cicada and reputedly the loudest insect in the world. Documented by the Danish zoologist Johan Christian Fabricius in 1803, it was the first described and named cicada native to Australia.

MONDAY FACTS

Hello wet Monday this computer is bring a bitch…………..

In the middle of the Atlantic two of the huge plates that make up the Earth’s surface the African Plate and the American Plate are moving apart a the same rate as fingernails grow.

Every cubic mile of seawater holds over 150 million tons of minerals.

In 1978, Emilio Manco Palma became the first person ever to be born in Antarctica

Before 1957, there was a law prohibiting and building in the city of Los Angeles having more than 13 storeys as they were afraid of earthquakes.

London Bridge built lie 180 odd years ago was bought and transported in 1968 to Lake Havasu, Arizona

WEEK 42 OF 2022

Dad would be 80 today, I miss him so much. Had a good night up at 6.30amd, Tim also got up dressed for work, leaving at 7am.

Went to use the printer but it isn’t working right the paper won’t feed through and I can see no jam.

Tasha was suppose to do some food for us but instead got stuck into her yard.

Jess helping me into bed tonight.

A new day for this older body woke at 6.20am rang Tasha but she was already at the gym.

She turned up at 8am I asked her to look at the printer but she didn’t have time. I was expecting her to do the shopping but she didn’t.

Had a restless night woke in a bit of a mood and shaking so much in my legs standing isn’t easy and I had no help which didn’t do anything for my mood. Snapped at Tasha when she came down not her fault I forgot I could ring her.

My mood has improved.

I have done bugga all today

Had a good night after a not so good shower warm water and no pressure. Although Tasha managed to get both but Tim said this morning that there was no hot water and he had reported it.

At 11.30iah people from housing arrived to talk about the new ramp to be installed and to check the bathroom was up to scratch. It isn’t so they rang the bathroom mob and they turned to discuss matters.

I now will have bathroom people here tomorrow to do whatever they have to do.

Been a warm day.

Another good night till 5.30 this morning when after peeing I get back into bed only to have a panic attack. I had to wake Tim to help me out of bed and off with my mask, which I felt was making it hard to breathe, (it wasn’t).

No school for Leo he has an appointment.

Also Leo now wants to be called Samuel or Sam.

The bathroom guy arrived around 8ish. He was here till 1.30pm and had a far bit to do.

Another good night and better morning I have reduced pain in my knees.

The kitchen is still leaking and we still have no hot water.

Plumber arrived the hot water heater is good so he arranged for a sparky to come he said it was tripped and if we don’t have hot water to call him tomorrow and he will pass it on to Ausgrid.

Tasha has done some sort of damage to her leg while at the gym as she is in so much pain.

Hey Hey it’s Saturday and we have hot water, I have been up since 5.55am I feel good and happy but of course there is pain and shaking as usual.

I forgot yesterday to mention that Kathy and family have gone away for the weekend. They are at Dubbo.

Tim made and hung curtains over back sliding door as well as a bag for he back of my wheelchair and 2 cushions. He set the dryer in place since we lost our awning there is no protection outside for it.

I;M NOT DEAD JUST IN A BRAIN FOG

EXTREME CREATURE

Ok here we are at creature day aka Tuesday and today’s creature is the super cute Koala.

Koala’s sleep as much as 20hrs per day, the reason is because the gum leaves they eat are difficult to digest and low in nutrients so they sleep to conserve energy.

They also have no need to drink water regularly as the gum leaves offer the water they need. They also smell like eucalyptus, make weird, strange sounds.

They are born without hair/fur, ears and are blind, they have fingerprints similar to ours.

Koala comes from an Aboriginal word.

FACTS

Monday morning here is Newie (Newcastle) so it is fact day.

People didn’t always say “hello” when answering the phone, it is believed they said “ahoy-hoy’ in 1878…………really sounds like Mr Burns (The Simpsons)

Four US presidents have been assassinated

Abraham Lincoln 1865

James A Garfield 1881

William H McKinley 1901

John F Kennedy 1963

A seagull can drink seawater because it has special glands that filter out the salt.

Ocean waves can travel as fast as a jet plane.

The Hawaiian alphabet has only 12 letters.

WEEK 41 OF 2022

Had a decent night, woke to a very wet kitchen floor will need shoes on when I pack the dishwasher.

Spent the morning doing stuff on the computer before turning the telly on to watch something.

MY POP’S BIRTHDAY HE WOULD BE 97

Had a mostly good night till 3am when my legs began to shake when I got up to pee. I did manage to go back to sleep till 5.20am when I decided to just get up.

On getting up I couldn’t find my fruit or the cheese & bacon I had Tasha get me yesterday. I had to wake Tim and ask what happened to them. He packed them in the car to take with us when we go into the motel, I said how am I suppose to eat them in the car. I told him that we may not be able to check in till 2pm.

Kathy has been doing a lot of work on the family genealogy.

First day of term 4 of school.

We are now in temp accommodation it is a nice place except the bed is too high and I can’t access the power points.

Tim was in such a rush he just dropped me off and left. I am shaking badly stress does that. I have no idea how I am going to put myself to bed.

I messaged my girls letting them know what’s what.

Kelli (niece) came over and helped me. She moved beds found power points and got me ready for bed and into bed. I will sleep in the single bed as it is lower.

I had a rough night been awake and up since 4.30. I am still shaking all over badly.

Tim has contacted the company telling the that place really isn’t suitable for me.

We are now at a different lot of apartments, and have the same problem. However this place has a sofa bed I can use.

This place isn’t disable friendly and Tim had to stand on a chair to reach the plates and glasses.

Had another somewhat restless night woke with a shocking headache. Had an issue around 3am when I tried to get up to go to the loo, I couldn’t get out of the bed. I was crying for Tim to help me which he didn’t The problem was I was laying in the middle of the bed and couldn’t move to the edge. I didn’t have much of a struggle at 5.30am when I got up.

Having a good day more or less, breaking out in a sweat often.

It took me 5mins to get clean undies on and clean top, I was unable to get my pj pants on so will go to bed with just what I have on. I cried a lot.

Had another bad night I found that the damn bed gave me a headache each time I laid down. I woke at 4.50am.

Something that annoys me is getting seated well only to discover I have left something on the other side of the room.

I am as close to bored as I have ever been

I have had a painful day but not distressing, not expecting the night to be any better.

Had a rough night awake and up at 5.30am. Had a wash and clean my teeth.

Damn I miss Tasha.

Going home today. I DO NOT want to stay here another night.

Got home around 10ish no workmen here and the house is a shambles but Tim & Tasha cleared a path to out bedroom and the bathroom. So we are staying here.

Paige from the DoH rang to let us know the wok should be finished by Tuesday.

I slept well in my own bed, didn’t wake till 6.30am, the furniture has been moved back into the lounge room. However, I am still writing this in the bedroom as there is a lot to do before I can use my computer desk.

Sandy called in to see me and get her birthday bottle of Jim Beam we had a good chat.

Kathy and Tim spent hours sorting the lounge room out and set the TV up.

MY CONDITION part 3

Types of Dystonic Tremor

• Dystonic tremor appears in the same area of the body which is affected by dystonia. So, a person suffering from neck dystonia will have twisting of the head along with shaking movements of the head.
• Dystonic tremor can also appear in a different part of the body to the dystonia. If a person has neck dystonia he/she can have dystonic tremor in the hand.
• Dystonic tremor may not be present with other dystonic symptoms; however, if a person has a family history of dystonia, then it can be suspected that he/she may also have dystonia.